Raksana, an adult ward of the Butterfly Children Foundation, was born in a small Russian city, where at that time no one knew anything about her rare diagnosis - epidermolysis bullosa.
This is a genetic disease in which the skin is stratified and injured by careless exposure. Raksana's disease is severe – wounds form in the deep layers of the skin, which is why her fingers have grown together on her hands, and her hands have turned into a kind of tightly bandaged stump. Elementary actions – holding a spoon, brushing teeth, buttoning clothes, have become almost impossible and the girl really needs outside help.
Raksana says that her biggest dream is independence.
We can fulfill it. The Butterfly Children Foundation helps adult wards to be hospitalized at the A.M. Nikiforov Clinic of the Ministry of Emergency Situations of Russia in St. Petersburg, where specialists who performed finger separation operations for many "butterflies" work. Before the operation, Raksana needs to come for an examination, and this requires additional expenses.
Let's help her prepare for such an important operation together!