The beneficiaries of the Butterfly Children Foundation are patients with epidermolysis bullosa (EB), a severe genetic skin disease.
With EB, the production of proteins that form the skin is disrupted, which makes it vulnerable: any friction or pressure can lead to skin separation and the formation of wounds. In severe forms of the disease, the mucous membranes are also involved in the pathological process.
As a result, the disease affects many organs and systems of the body, and cancer risks increase. Patients with EB regularly require complete examination and treatment of complications, including surgical procedures.
Today, only a few federal medical centers can provide qualified care to patients with such a rare diagnosis. The fund helps wards get treatment under compulsory medical insurance and pays for travel to the place of hospitalization and back.
We are opening a collection for tickets for the Foundation's wards. This will allow “butterflies” from remote regions of Russia to reach hospitalization sites and undergo inpatient treatment from the best federal experts on their disease.
Let's help them with this!
