Little Saparche, who is not even two years old, has been diagnosed with a rare disease. Toxic bile acids accumulate in the boy's body, affecting his liver and nervous system. The only thing that makes life easier for the child - an expensive drug Orfakol, which currently has no analogues in the world.
After the start of taking the drug Saparche became better: tests stabilized, liver indicators began to come back to normal.
Doctors were able to find the cause of the extremely difficult condition of the child, were able to pick up and drug therapy, but now the family can not get this drug from the state. The boy's parents applied to the Ministry of Health in their place of residence, but were denied help. They did not stop there, they write to all authorities.
The monthly course of the drug costs 790,000 rubles. For the family it's an impossible sum. Saparca's parents are worried because the drug will only be available until mid-May, the drug was given to them as charity aid. If no money is found soon, the treatment will have to be interrupted. This will not only reduce all efforts to zero, but also lead to complications in the boy's state of health (liver cirrhosis and failure of the whole body).
Therefore, the only salvation for them was to appeal to all people who are not indifferent. The family has no choice. But we do have one!
So let's all together, by joining forces, help, while the Dandamayevs' family seeks their legal rights to provide vital medicine for Saparcha from the budget, not to lose the baby!
Verified by Tooba
Verified by Tooba
