Tickets for Kira and other wards with genetic skin diseases for hospitalization and rehabilitation.

Little Kira was born around Christmas. But happiness quickly turned to concern – the doctors noticed the baby’s excessively dry skin.

“On the third day of her life, she turned purple, she was burning all over, as if on fire,” Kira’s mother recalls. The doctors announced the diagnosis – ichthyosis. With this genetic disorder, the skin is unable to retain moisture; it constantly flakes, becomes cracked, and itches.

The mother moisturizes her daughter’s skin with special emollients 5–6 times a day. Kira was found to have a threefold increase in vitamin E levels in her blood and elevated liver function tests.

To detect and prevent complications in a timely manner, it is important for children with ichthyosis and bullous epidermolysis to undergo regular hospitalization and rehabilitation at federal clinics.

We are launching a fundraising campaign to purchase tickets for Kira and three other children with rare genodermatoses to Moscow and back. Let's help the children receive quality medical care in a timely manner!