Patimat is 13 years old, she is the youngest child in a large family. The girl lives with a severe dystrophic form of epidermolysis bullosa (EB), affecting not only the skin, but also the mucous membranes. Due to the narrowing of the esophagus and problems with the oral mucosa, she cannot eat on her own, doctors were forced to install a gastrostomy patient.
For patients with EB, proper nutrition is not just a necessity, but a way to fight the disease. Chronic wounds, constant loss of fluids, proteins and iron lead to protein and energy deficiency, problems with wound healing and delayed physical development. Special nutritional nutrition can help.
Patimat needs 25 cans of low-lactose Nutricia Nutridrink Nutrizon mixture per month. This will make up for the missing nutrients, improve skin regeneration, and reduce the consumption of dressings. and, most importantly, to give her a chance to live without constant pain and hunger.
There are those who do not sit down at the festive table, and for them eating through a gastrostomy is just a way to live, and its cost is unbearable for the family. Instead of bright fireworks and a brief moment of joy, we can give Patimat a chance for a comfortable life and normal physical development.
Make a New Year's miracle possible — help raise funds for food for Patimat!
