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Mark had a checkup.

Spina bifida

Charitable foundation · Moscow

collected

of RUB 31,095

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When Mom and Mark came out of the neurologist's office, she said: "I wish we had done this exam sooner. No one told me that a urologic exam was so important."

Indeed, in children diagnosed with spina bifida, such as Mark, urologic problems are often not visible to the naked eye. That's why parents are often slow to undergo examinations. Meanwhile, the consequences can be irreversible.

When Mark had a neuro-urological examination, it turned out that his left kidney is almost not working anymore. This information came as a shock to his mother. Fortunately, the family came to an excellent specialist - the neuro-urologist Tishchenko Galina Evgenievna. The doctor immediately prescribed treatment, explained what and why. She prescribed a catheterization regimen. She showed me how to use the catheters and taught my mother how to place them. She gave her catheters for the first time. And wrote recommendations for putting the catheters in the IPRA, so that Mark would receive them free of charge from the state in the future.

In this case, the problem was discovered and immediately set out to solve it. We are sincerely thankful to everyone who participated in collecting money for such an important medical examination for Mark. Now the boy is in good hands of doctors.

The charitable fund is preparing the report

About the campaign

Mark needs to be examined

Little Mark dreams of becoming an architect. Already every day he builds castles out of kinetic sand, and draws fancy houses on paper with paints. Who knows, maybe this smart kid will grow up and build new cities for comfortable life?

Mark has spina bifida, a complex birth defect. Because of this, Mark cannot walk, he deftly twists the rims of his active stroller and is as fast as his friends. But there are also problems with Mark's diagnosis that are not always as obvious as movement disorders. Children diagnosed with spina bifida have kidney and urinary disorders 100% of the time.

A child diagnosed with spina bifida should definitely have a comprehensive urologic evaluation (CUDI) to correct the urologic abnormalities. Proper urological care will help the child to adjust the urinary system, give up wearing diapers all the time, and facilitate social adaptation. Delayed and untimely care can lead not only to the most serious complications in the form of impaired kidney function, but also to the threat to the life of the child.

Doctors in outpatient clinics often do not know about the specifics of monitoring children with a diagnosis of spina bifida and limit themselves to standard examination protocols, which are insufficient. Most parents learn about the importance of CUDI when they apply to the Spina Bifida Charitable Foundation from the staff. But CUDI is not on the list of mandatory medical examinations. That's why we are collecting funds to pay for CUDI for Mark.

Let's help Mark get an important examination now!