Lisa is 18 years old. She is graduating from art school this year and will soon have an exhibition of her work. It is very difficult to do what you love because of the severe form of the disease - epidermolysis bullosa (EB).
The skin in this disease is vulnerable, so such patients are called "butterflies". Lisa's parents learned how to cope with their daughter's illness, to make permanent bandages to avoid the appearance of new wounds and blisters on the skin. The girl had to undergo surgery to dilate the esophagus twice and repeatedly stay in the hospital for a long period. Every year, bandages are becoming more difficult to do because of Lisa's pain syndrome, daily bandages are too heavy for the girl, you have to use additional means that allow you to keep wounds under a special protective cover for longer.
Fortunately, the collagen coating of Promogran helps, the effect of it is noticeable after a few days: the damaged areas of Lisa's skin are restored. The problem is that this is an expensive drug that requires regular use.
The Butterfly Children Foundation opens a collection for Lisa for artificial collagen coating. Let nothing stop her from painting, spending time with family and friends and enjoying every day!
