Patimat is the youngest child in a large family. She is very developed for her young age. Even being home-schooled, the girl demonstrates excellent success in education.
Despite his diagnosis – epidermolysis bullosa – Patimat has hobbies related to fine motor skills, which is very difficult for a patient with a genetic skin disease. After all, the girl's skin is extremely sensitive, and even light touches can lead to wounds. Daily dressings and skin care procedures are not the whole range of "inconveniences" of the disease. With epidermolysis bullosa, the internal organs of the patient are also affected, the mucous membranes become inflamed and problems with dentistry arise.
Due to a special form of the disease – dystrophic – Patimat, annual hospitalization is necessary. Now the girl is expected in Moscow for a series of examinations during hospitalization, consultations with a rehabilitologist-occupational therapist and dental care.
We will help the Patimat to enjoy life and please their loved ones with their talents!
