At birth, Maidat was diagnosed with high bilirubin, and a month later ferritin rose. The girl began to undergo regular blood transfusions — blood transfusions. When Maidat turned two years old, doctors confirmed the mutation in the gene and diagnosed her with beta-thalassemia.
Now Maidat is preparing for a bone marrow transplant. This is an opportunity to reboot the body, set it up for proper operation. Before starting the transplant, it is necessary to undergo a course of treatment with the medicine Jakavi. This will reduce the likelihood of rejection of donor cells after transplantation. However, according to the attending physician, this is an experimental type of treatment, quotas do not apply to it, which means there is no way to get it for free.
Support Maidat and help her start treatment as soon as possible.
