Epidermolysis bullosa affects not only the skin; other body systems are also affected. Patients are regularly hospitalized to adjust their treatment regimen and monitor the development of complications.
Medical institutions that can help people with EB are located in Moscow, and the fund’s wards live in all corners of our country. They have to regularly come to federal centers for hospitalization, and most families cannot afford such expenses.
The foundation covers transportation costs and helps the “butterflies” get to the place of hospitalization and return home. Now we need to buy tickets for 10 wards from remote regions and their accompanying people so that they can come to Moscow to the National Medical Research Center for Children's Health, where the first department in Russia operates, specializing in helping young patients with EB.
The guys definitely need to be examined, let's support them and wish them stable health in the new year. Tickets are a chance for “butterflies” to continue to live and develop normally.
