Matvey is almost 4 years old, he has epidermolytic ichthyosis. This is a rare (1 case per 300 thousand births) genetic skin disease, in which the signs of ichthyosis - dryness and peeling - are combined with blisters and wounds - manifestations of another severe skin disease - epidermolysis bullosa.
Every morning of Matvey's mother begins with a long treatment of her son's skin. And that's how her day ends. And during the day, the boy’s skin needs to be moistened several more times with special compounds - emollients. Daily care procedures help to keep Matvey's skin in a satisfactory condition. This is the only opportunity to live and develop normally.
Caring for Matvey's special skin requires not only time, but also constant financial investments. The cost of medical devices for one patient with a severe form of ichthyosis can reach several hundred rubles per month.
The Butterfly Children Foundation opens a collection for ointments, creams, dressings and medicines for Matvey to protect his special skin.
Verified by Tooba
Verified by Tooba
