Thank you for helping Vlad get a genetic test!

Tol'ko vmeste

Charitable foundation · Kemerovo region

collected

of RUB 56,787

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We express our deep gratitude to everyone who took part in the collection for little Vlad. His analysis is paid!

The analysis was submitted on May 25, and now the family is waiting for its transcript, which will be ready in 3 months.

Based on the results of this analysis, doctors will be able to adjust drug treatment, thanks to an updated diagnosis, which will reduce epileptic activity and prevent seizures, improve the child's condition!

Thank you so much for your help! May the good you have done return to you a thousandfold!

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About the campaign

Vlad needs a genetic test to establish a diagnosis and find a treatment!

Vlad 4 years. The boy was born prematurely, which provoked multiple developmental disorders.

On the recommendation of a neurologist-epileptologist, he needs to undergo a genetic analysis, since Vlad has partial lissencephaly (smooth brain) of the right frontal lobe, and this damage may be due to a genetic failure. And if this is so, then certain drugs are needed for the correct treatment of epileptic activity.

Vlad does not have clinical seizures, but according to the doctor: "If they come, then they cannot be stopped by drugs, since there is serious damage to the brain according to MRI."

Vlad's further treatment depends on this analysis, and there is hope that with a well-chosen treatment, epileptic activity will decrease. After all, its presence affects the mental development and speech of the child.

The required genetic test is paid, it is not included in the basic CHI program. The cost of the test is too high for the family, so they asked for help.

Together we can help him!