Eduard has the most severe genetic disease - progressive Duchenne muscular dystrophy. The essence of this disease lies in the fact that a child is initially, it would seem, born absolutely healthy and only then, after a certain time, you can notice the severe consequences of this diagnosis. It all boils down to the fact that initially the muscles of the pelvic girdle and hips are affected, then the shoulders and back, and then gradually immobility occurs.
Now Eduard sees and hears everything. But he can't walk on his own anymore. He is almost completely dependent on the help of others.
Taking into account the fact that Duchenne syndrome is a relatively rare genetic disease, children with such a disease and their parents need professional support from narrow-profile medical specialists who would answer their questions.
The solution to this problem is to organize a conference with the necessary specialists. By supporting the collection, you will be able to help children with an incurable genetic disease and their parents to get advice from medical experts, help from psychologists, as well as the opportunity to start communicating with each other!
Verified by Tooba
Verified by Tooba
