The hobbies and dreams of 15-year-old Khadizhat are the same as those of her peers, but her life is different from the life of her girlfriends. Khadijat has epidermolysis bullosa in a severe, dystrophic form, which means that every morning the girl begins with dressing, which takes about 2 hours. Without it, she would not be able to live a normal life.
Dressings protect Khadizhat's skin from damage, but ordinary bandages are not suitable for them: they are too rough, stick to wounds and hinder movement. You have to buy special atraumatic dressings, ointments and creams for the skin and soft, breathable elastic bandages, which are usually used in burn departments.
The cost of monthly dressings for "butterflies", as patients with epidermolysis bullosa are called, can reach several hundred thousand rubles a month, and dressings are required for life. Until another therapy is available, this is the only way to keep Khadijat's skin in good condition and live (albeit with some restrictions) the life of a normal teenager.
Let's help Khadizhat live without pain for 2 months!
Verified by Tooba
Verified by Tooba
