Tell me who your favorite Disney character is and I'll tell you who you are: 4-year-old Amal Lukmanova loves Simba from The Lion King. The story of a little lion cub, bravely overcoming all difficulties, in many ways describes the fate of Amal herself.
Amal has epidermolysis bullosa, a rare genetic disorder in which the skin fails to perform its primary protective function. Any activity - going to the pool, riding a bike, or even just putting together a puzzle - can end up for Amal with the appearance of wounds that will heal for a long time and painfully.
For dressings, special tools are needed, the same as used in burn centers. These are atraumatic modeled dressings that do not stick to wounds, soft pads for especially traumatic areas and several types of elastic bandages that do not hinder movement.
The better condition Amal's skin can be kept, the easier her disease will be in the future, the greater the chance that the baby will live in good condition until the advent of targeted therapy, the development of which is already in full swing.
Let's help the Amal family!
Verified by Tooba
Verified by Tooba
