The four-year-old girl Vika has an unusual surname Prefix. There are such people in old Soviet stories about pioneers - however, what was not in these stories was a serious illness called epidermolysis bullosa.
BE is caused by a rare genetic disorder that causes the skin to become fragile and stop protecting a person. Therefore, children with such a disease are called “butterflies” - and this image also emanates the romance of children's books, only in itself it carries completely unchildish difficulties.
Any touch to Vika threatens to turn into a terrible injury - blisters will swell on the skin, which later become a painful wound. There is currently no cure for this disease. But you can live with it.
Vika needs daily dressings - this is a complex process that can take several hours a day. In addition, ordinary bandages are not suitable for such procedures - they will only harm, leave new injuries behind. Necessary special dressings, as well as special creams and ointments. All this is very expensive.
But with your help, the foundation will be able to raise all the necessary funds and transfer them to Vika's family - and the girl will be able to forget about the pain for several months and do her favorite children's activities, which are not so different from the hobbies of the pioneers!
Verified by Tooba
Verified by Tooba
