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Amirmohir and Yasmina successfully passed their checkups and are back home!

Jizn kak chudo

Charitable foundation · Moscow

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of RUB 67,355

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Thanks to the help of concerned people, Amirmokhir and Yasmina Kalonova from Pyatigorsk were able to fly to Moscow and undergo a checkup. With the funds raised on the Tuba platform, the foundation bought tickets and paid for the hotel near the Center for Transplantology. This check-up was vital for the children, as they suffer from a severe hereditary disease, which has led to severe liver damage. Conservative treatment proved ineffective and transplantation was required. Now their lives are not in danger, but they have to make regular visits to the Shumakov Center in Moscow to have their transplants evaluated and to adjust their medications. The Kalonovs family would like to heartily thank the Tuba team and all the donors for their help!

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About the campaign

Amir and Yasa need help buying tickets and paying for lodging!

Yasmina and Amirmohir are siblings. Their age difference is small, and the diagnosis is the same: Bayer's disease. It is a rare hereditary disease associated with a lack of enzymes and disorders of the formation and excretion of bile in the body. The only effective treatment today is a liver transplant. For the girl, the donor was her mother, but with Amir everything turned out to be more complicated. A donor was not found right away. Repeat donations are not permitted, so my mom couldn't become a donor for my son, either. Dad wasn't a match. But everything ended safely. In August 2019, the boy underwent a successful liver transplant from a related donor, an uncle. Yasa is now ten and Amir is five. The children's condition is stable, and they are developing as normal children. The girl enjoys ballet and English, and her fidgety little brother goes to kindergarten, loves playing with cars and building a construction set. In April 2022 the children are scheduled for checkup examinations at the FSBI "Akademik Fedorov Scientific and Research Center for Cardiovascular Surgery". Shumakov. After transplantation the children have to take medication therapy for life. As they grow, the doctors have to adjust the dosage, so these examinations are very important. The Kalonov family has many children and their income is very modest. They cannot afford to pay for their plane tickets and accommodation in Moscow on their own. Let's help the family together!