Bayaru is a young girl from Altai. Perhaps it was the beauty of the mountain ranges and rivers that gave impetus to her unusual hobby - she makes crafts from waste: saving the unique nature of this region, she turns plastic bottles, caps, pieces of paper and other garbage into works of art. And so the girl finds a way to hide from her illness.
For 20 years she has been living like a “butterfly”. This is the name given to people with a rare genetic disorder, epidermolysis bullosa. Because of this ailment, Bayard's skin became fragile and tender, like the wings of those same butterflies. Any careless movement can result in a serious injury - first, small swellings appear on the skin, which turn into a painful, non-healing wound.
To avoid pain, the girl has to protect herself from the outside world - this requires special dressings and creams that need to be constantly treated with the skin. These are expensive drugs that take up most of the family's savings.
Bayard has a dystrophic form of BE, the disease has given serious complications. Now she cannot walk and she needs orthoses - these are special devices designed for the needs of the girl.
Your help is needed to give the girl the opportunity to walk and purchase expensive devices - and the Children-Butterflies Foundation will send a box of dressings and creams to Altai.
Verified by Tooba
Verified by Tooba
