Varvara needs a genetic analysis to stop the seizures and return to a normal life.Verified by Tooba

Varvara needs a genetic analysis to stop the seizures and return to a normal life.

Sodruzhestvo

Charitable foundation · Moscow

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of RUB 87,500still needed
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About the campaign

Varya is 9 years old; she was born and grew up a healthy girl. Trouble came two years ago: while memorizing a school poem, the left side of her face suddenly started twitching, and her gaze became glassy. Examination showed—it was epilepsy. Various treatment regimens were tried for Varya, but the seizures still cannot be stopped.

Studying at school has become difficult: Varya gets tired quickly, cannot read or write for long, and cannot stay alone in a room because of sudden falls. It is hard for her to make friends—children do not understand why she suddenly freezes or answers questions slowly.

Despite her illness, the girl tries hard in class, loves walking in the park, and feeding ducks. Varya’s main achievement over the past year is that she returned to swimming in the pool. In the water, she feels light and free; there, she is not afraid of falling.

Now Varya needs to undergo a genetic analysis, a 'trio by Senger.' This will help identify hereditary causes of epilepsy and understand which medications will work specifically for her. For the girl, this is a chance for a safe childhood, with room for learning, playing, and simple joys.

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Sodruzhestvo

Charitable foundation · Moscow

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