Ksyusha's story is not like the others. The five-year-old has lymphedema. Behind this name hides the "elephant's foot" disease. It manifests as an accumulation of lymphatic fluid in the tissues due to a disturbance in its flow. Ksyusha's legs are affected to a greater extent, and her hands and half of her face to a lesser extent.
The girl has had the disease since birth and the family has been struggling with it ever since, right from the doorstep of the maternity hospital. After the birth the nurse carrying the swaddled baby Ksyusha to her mother even mentioned that she had given birth to a boy - her foot swelled up so much.
The baby was discharged as a healthy baby, not paying attention to the apparent problem. But after an examination, which her mother insisted on, Ksyusha was finally diagnosed. Ksyusha has a big family - her mother has four other children besides her. The family does not live with her father.
The fate of the youngest daughter caused a very difficult situation: the treatment of lymphedema in the country is very expensive, disability gives with great difficulty, it is necessary to wear a compression stocking, which also costs a lot of money. Mom has to spin like a squirrel in a wheel, pounding the doorsteps of the Ministry of Health and the MSE office all these years, while not forgetting about the rest of the family.
Ksyusha has been suffering from pains in her feet since she was little - severe swelling makes it difficult for her to live and move, and there are cases of lymphorrhea, which Ksyusha finds especially hard - she cries and often wakes up, and there have even been convulsions. It is frightening to imagine how such a small child can cope with it. Of course, mom does not sit idly by, and if the opportunity is given, at least a little, but some treatment. Massages, ointments, strokes, bandages help but don't cure the disease itself.
There are no specialists for Xusha's disease in Perm, so she began to look for clinics in other cities, and then noticed the medical center "Otekovenet" in Moscow. They are ready to take Ksyusha, but not for free. Let's help little Ksyusha step into the future with confidence and without pain!