Roma’s progress in speech and new friends!

AiF. Dobroe Serdce

Charitable foundation • Moscow

Dear friends, thanks to your support, Roma was able to complete a series of individual and group classes at the hearing and speech rehabilitation center and gain a lot of useful experience. He enjoyed going to all the lessons, and the teachers noted his involvement and diligence.

Classes with a speech therapist helped to put some new sounds, so that Roma's speech sounded clearer. And with the defectologist, he learned to better read emotions from pictures and understand the essence of what is happening, which now helps him to navigate more confidently and communicate.

The thing is that the boy has a rare genetic condition called Treacher Collins syndrome. Due to underdevelopment of the facial bones, he has a small jaw, no earlobes, and his hearing is reduced to the third degree of hearing loss. The bone‑conduction hearing aid helps him hear, but due to his slurred speech, Roma finds it difficult to communicate with his peers.

“During group classes, my son learned to interact with other children, to notice his own emotions, and to control them.” “In the past, when things were difficult for Roma — when he felt misunderstood or when things didn’t go according to his plan — he could get upset and offended,” his mother, Lena, shares.

Even during the training, progress with sibilant sounds became noticeable — the speech therapists were able to help him master them, even despite the recently extracted teeth and the Schwartz appliance used to widen the jaw.

But the most important thing for him was that during the rehabilitation, he finally found friends, with whom he spent all his free time after classes. The mother noticed that her son seemed to have grown up, becoming more sensible, calm, and self‑confident.

“Roma really enjoyed the course; he left with tears in his eyes. I sincerely thank everyone who helped my son get to an important rehabilitation session before starting first grade, because the whole treasury of my child’s successes was built on the good donations of tubers!”

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Campaign information

Roma needs hearing and speech rehabilitation: he dreams of speaking clearly and clearly!

9-year—old Roma has a rare genetic syndrome - Treacher Collins. Due to the underdevelopment of the facial bones, he has a small jaw, no auricles, and hearing is reduced to grade 3 hearing loss.

He heard his first clear sounds almost a year ago, when he was fitted with a bone conduction hearing aid. From that moment on, he began to accumulate a passive vocabulary, and by the age of three he had his first words. Now Roma speaks in sentences. He has an excellent memory, he can recite the text he has read in detail, but only his speech is too indistinct. If the mother and the teacher still understand the words, then the peers refuse to communicate, they leave without listening. Roma is very offended by this. His biggest dream is to speak clearly. The boy is sure that then he will have many friends.

A few years ago, Roma was already undergoing hearing and speech rehabilitation, after which there was incredible progress in speech, he managed to produce many sounds that had been unsuccessfully struggled for many years. While working with specialists, it turned out that despite her deafness, Roma has an excellent ear for music. He unmistakably recognizes all the notes played to him and loves music.

This year, Roma graduated from the zero grade, and in September he will go to the first, and possibly to the music school. By this time, he really needs to improve his pronunciation and make sounds so that speech problems do not interfere with his studies, communication, and friendship. Let's help!

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