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Adelina’s skincare products have been delivered

Deti-babochki

Charitable foundation · Moscow

collected

of RUB 345,271

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Adelina lives with Netherton syndrome — a rare genetic condition that causes the skin to fail to retain moisture. For her, an ordinary day isn’t about “putting on some cream,” but about a strict sequence of actions: first — the most sensitive areas (ears, eyes, nose), then — the body; layers of products are applied one after another (cream, balm, and, if necessary, restorative treatments). The procedures are repeated 3–5 times a day. As the child grows, the consumption of products increases — and the supply runs out quickly.

Thanks to your participation, the family now has the necessary supply of care products. This means that in the coming weeks, the care routine won’t have to be disrupted due to a lack of funds.

The “Children‑Butterflies” Foundation thanks everyone who supported the fundraising. Your help doesn’t just cover “supplies” — it alleviates pain and makes the days more peaceful. Thank you for being there. ❤️

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About the campaign

Adelina has ichthyosis. She needs essential skin moisturizers!

Adelina was born with a rare genetic disease – ichthyosis, Netherton syndrome. With this diagnosis, the skin is very dry, constantly cracking, peeling, causing itching and pain. The girl is under the wing of the charity foundation "Butterfly Children", thanks to the foundation's experts, the family managed to build a clear system of skin care for Adelina: every morning the baby begins with bathing and moisturizing the skin.

"The care procedures take place in stages: first we treat the ears, the next stage is the nose and eyes, after that we treat the body," says Adelina's mother. – We use a cream, after – a balm, if there is redness or significant cracks in the skin, then we use regenerating agents. During the day, this procedure is performed from 3 to 5 times, depending on the condition of the skin. "

Adelina needs to moisturize her skin regularly. The baby is growing, and more and more skin care products are needed. We are opening a collection for the purchase of creams, balms and moisturizing oils for Adelina.

Let the itch and pain not overshadow the baby's childhood!