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Kamil has got a new brace!

Important people

Charitable foundation · Moscow

collected

of RUB 101,617

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Kamil has spinal muscular atrophy (SMA). Due to muscle weakness, he has developed a curvature of the spine and a chest deformity, so he needed a special brace.

Thanks to your support, Kamil has received a new, bespoke functional corrective brace, made to suit his specific needs. It supports his back, helps slow the progression of scoliosis and makes sitting more comfortable. This support is also important for his breathing and the functioning of his internal organs.

Thank you to each and every one of you for helping Kamil, a beneficiary of the ‘Important People’ Foundation!

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About the campaign

Kamil, who has SMA, needs a brace to breathe more easily and grow

Kamil is one and a half years old and has spinal muscular atrophy (SMA). Thanks to timely intervention, he received gene therapy funded by the state, which offered a chance to halt the progression of the disease.

However, the effects of SMA have already made themselves felt. Due to muscle weakness, Kamil has developed severe spinal curvature and his ribcage has become deformed. This affects his breathing and his general well-being.

He needs a custom-made functional corrective brace. It will not only support his spine but also prevent his condition from worsening. His previous brace no longer fits Kamil. His parents don't have the funds to purchase a new one themselves, and they won't be able to obtain a new certificate from the state until next year.

Let’s help Kamil not to miss this opportunity! The brace is a support that will help him grow and breathe without pain.