Sasha is a "butterfly": he was born with extremely fragile skin. Due to any touch, friction of clothes or hugging, blisters appear on the body, which turn into painful wounds.
As a child, almost nothing was known about epidermolysis bullosa — Sasha's parents had to take care of her skin intuitively. Due to improper care in childhood, many patients develop severe complications, such as finger fusion.
Sasha starts every day with bandages: you need to apply ointment and apply a soft bandage — it takes hours. Regular bandages are not suitable: they injure the skin and provoke infections. Special simulated bandages are needed — they protect the skin, heal wounds and prevent complications. But they are very expensive: hundreds of thousands of rubles are required every month.
The Butterfly Children Foundation is opening a collection so that Alexander can have a supply of bandages. May he live without pain and go out for walks more often!
Verified by Tooba
Verified by Tooba
