Amalia spent most of her short life in hospitals. It all started when she was three months old: unexplained high fevers, intestinal cramps, and severe abdominal pain. Twice, her condition became so severe that Amalia ended up in intensive care.
Doctors couldn't figure out what was happening for a long time. The girl underwent numerous tests before being diagnosed at age three with congenital immunodeficiency syndrome, hyper-IgD syndrome. This is a rare genetic disorder in which the immune system malfunctions, causing autoinflammatory attacks. These manifest as a debilitating fever with a rash and pain in the joints, muscles, and abdomen. Amalia dreams of playing with other children, attending developmental activities, and going to holidays without the fear that any small thing could trigger another attack.
Tubers, we are starting a fundraiser to cover treatment for Amalia and another patient with a congenital immune deficiency. They can both be helped by providing life-saving treatment. Let's help pay for the medications for these two sunflowers!
Verified by Tooba
Verified by Tooba
