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Thanks to your help, Ulyana has the electric wheelchair, Jenya has the orthopedic corset!

Dom s mayakom

Charitable foundation · Moscow

collected

of RUB 338,580

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Dear friends, Ulyana now has the comfortable electric wheelchair which she can use on her own. Given that Ulyana has the long-term need for this assistive device, she can be more active and independent.

There is other good news. After further consultation with a physical therapist, it was decided that Ulyana no longer needs an orthopedic corset. That’s why we use your donations to help 12-year-old Jenya whose family is under our care.

Jenya was diagnosed with brain tumor five years ago. Jenya cannot move and speak. He eats via a nasogastric tube and breathes through a tracheostomy tube. The orthopedic corset helps Jenya sit properly and stop his spine from curving.

We are grateful for the support of the Tooba users!

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About the campaign

Ulyana needs an electric wheelchair and an orthopedic corset to deal with complications of her disease

Ulyana is 11 years old, and she starts 5th grade. Ulya is modest yet sociable. If you get to know her better, she will probably tell you about her friends and hobbies and show her paintings. The professional artist gives Ulyana regular lessons. It comes as no surprise that Fine Arts is one of the girl’s favorite school subjects. However, painting is also important for her because it involves fine motor skills. Holding a brush in your hand for a long time, carefully painting the details is physical activity. Ulyana has spinal muscular atrophy (SMA) type 2. It is the rare genetic disease which causes gradual muscle weakness and loss of movement. In late spring, Ulyana stayed in ‘The Lighthouse’ as an in-patient. Here she played board games with the other children and babysitters, came to the garden with her mother, and drew some landscapes. In short, she had a good time. She once said that she wanted to see the sea hoping there would be no jellyfish at the beach. Ulyana definitely would make a painting to depict it and keep it in memory. During her hospital stay some medical issues were resolved. A physical therapist of the ‘The Lighthouse’ recommended an electric wheelchair with a headrest so Ulya could use it on her own and sit correctly. For some time, maintaining a good posture became difficult because Ulyana has a curvature of her spine. Apart from the wheelchair, an orthopedic corset was recommended for the girl. It would help stop the spine from curving further and fix her posture. We intend to raise ₽338,580 in order to purchase the electric wheelchair and the orthopedic corset of appropriate size for Ulyana. We would be grateful for your support.