The disease of the twin brothers Kamal and Kalimulla from Makhachkala is very rare. It is associated with a metabolic disorder and has the formidable name of Zelweger Syndrome. It was not easy for doctors to make a diagnosis, as it is not common throughout the world. The Halitowyz family was not so lucky - a genetic test confirmed the syndrome in both brothers. And it immediately became clear where all these disturbing symptoms, which had been bothering the children almost from birth: poor appetite, pain in the tummy, vomiting, frequent bleeding and weight loss, came from. The disease runs hard, the work of all the organs and systems of the body: heart, liver, kidneys, neurological disorders begin, vision suffers. In young children, the disease progresses very quickly. Kalimulla sees very badly, he has cataracts and retinal detachment, and Kamal does not put on weight at all. To stop this destructive process, the babies are prescribed the cholic acid drug Holbam. Therapy with cholic acid is so far the only way to alleviate the condition of the children. The drug is produced abroad and is not registered in Russia, which means that it can be provided at the expense of the budget only after a special permission from the Ministry of Health. The procedure may take a lot of time, and the drug is needed urgently! The family cannot buy the medicine themselves, it is very expensive. The course of treatment for two months will take more than 4 million rubbles. With your help, we can buy 1 bottle of the expensive medicine!
Verified by Tooba
Verified by Tooba
