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Mariam was examined

Spina bifida

Charitable foundation · Moscow

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of RUB 23,200

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Little Mariam is now 2 years old. And she got to the examination on urology very timely. At the appointment with the neurologist Galina Tishchenko at the GMS clinic it was found out that the girl has big problems. So big problem that she was going to need an operation in a little while.

Kidney and bladder problems often cannot be seen with the naked eye, even on an ultrasound. That's how it was with Maryam - reflux was detected, that is, urine flowing into the kidney. The doctor prescribed treatment, as well as examinations to prepare the girl for surgery. She also paid attention to the child's concomitant problems that need to be examined. None of the doctors in the small village of Rostov region, where Mariam lives, had told and explained to her mother about her baby's condition in such detail.

Mariam's mother thanks everyone who took part in the fund-raising for the baby girl. After all, thanks to a timely examination, there is a chance to keep her kidney in working order.

The charitable fund is preparing the report

About the campaign

A child needs a kidney exam

Maryam is never bored, because she is growing up in a friendly and big family. She has 12 brothers and sisters at once! Now Maryam is three years old and a little behind in her development, but her mother's love and her family's care keep her going. The girl is developing, she understands everything, says few words and always knows exactly what she needs - she can show it with her pen. She loves it when older children read her children's books and sing her cartoon songs.

Maryam was born with a diagnosis of spina bifida (cleft spine). Because of this right after birth she had to undergo several surgeries. But the consequences of this diagnosis could not be avoided - Maryam's legs do not work, and her fingers and toes are always balled up into fists.

In addition to movement problems, children with spina bifida have another peculiarity that can cause serious harm to their health: they have no control over their bladder - they just don't feel that it's time to go to the toilet. Meanwhile, the urine goes back to the kidneys, and the children end up developing a urinary tract infection: from a mild form of cystitis to a severe one with kidney damage - pyelonephritis.

Children like Mariam have to be examined by a neuro-urologist every year. It's called CUDI. It is a comprehensive study, which allows you to assess how strongly the phase of accumulation and emptying of urine is disturbed, and whether you need to compensate for it with medicines, and to connect additional methods of urine diversion. In other words, CUDI is essentially a complete screening of the urinary system.

Unfortunately, there is no neuro-urologist in the small village of Rostov region, where Mariam's large family lives. And you have to go to Moscow for the important examination.

CUDI is not included in the list of mandatory medical examinations that a child undergoes when a disability is established. Polyclinic doctors rely on standard examination protocols - blood and urine tests. This is why parents often learn about the necessity of undergoing an annual CUDI for a child with spina bifida from the staff of our foundation.

Let's help Mariam go for an important examination!